Recognizing the stages of caregiving

July 29, 2019 at 12:37 p.m.

YOUR FAMILY

By Bill Dodds | Catholic News Service

More and more people in the U.S. are becoming caregivers for family members. A 2015 report by the National Alliance for Caregiving and the AARP Public Policy Institute notes, "The estimated prevalence of caring for an adult is 16.6 percent, or 39.8 million Americans."

As more people grow into this role, it is important for them to realize that there are stages in the caregiving process. Here are the stages of caregiving that some researchers have identified, although each individual caregiver won't necessarily follow this exact sequence.

-- Pre-caregiving. The caregiver sees himself or herself as a helper, beginning to lend a hand with a limited number of tasks, but doesn't identify as a "caregiver."

-- Self-identifying. Those caregiving tasks have increased to the point where the caregiver realizes and says, "I am a caregiver." The caregiver now defines the role or continues to "just do it."

-- Studying and researching. Adopting the role of a student, the caregiver wants to know and understand a loved one's condition or illness, including the symptoms and prognosis. The caregiver begins to look for resources for stress management and for informal support, such as family and friends.

-- Acting like a caregiver. The caregiver is actually doing the work, increasing the number of tasks and their frequency, learning new skills and improving on others. As the family member's health deteriorates, the caregiver begins to feel more stress.

-- Recognizing challenges. The caregiver sees the impact of the situation: the emotional strain for both the family member and the caregiver, the family member's resistance to accepting help and the caregiver's own exhaustion, anxiety and anger.

-- Getting help. The caregiver acknowledges the need for help. The spirituality of the role of caregiving becomes more apparent and the caregiver incorporates prayer and the awareness of God into daily activities. The caregiver locates and accepts formal support from social services and expands informal help to include the extended family, more friends and the parish community.

-- Managing the role of caregiver. With that added help, the caregiver begins to be more proactive in approaching the role. The caregiver may decide on a "game plan," learn about and use new coping strategies and begin to feel more in control and more confident.

-- Preparing for the end of caregiving. The caregiver understands that the role of caregiving will end with the death of the loved one. In many ways, the caregiver begins to grieve the loss of both the "once healthy beloved" and the person needing care that family member has become. This is the time the caregiver most clearly sees the true value of caregiving and the love and respect he or she has for the one who has needed care.

-- Moving on after death. The caregiver experiences shock, even if death was expected, and grieves the loss of his or her loved one. There may be a period of empty time in the day, a feeling of "now what do I do?" This is a good time to rest and reminisce, to find and use professional help and/or a support group for dealing with grief. Acceptance and appreciation of the experience will gradually come.

Bill Dodds and his late wife, Monica, were the founders of the Friends of St. John the Caregiver (www.FSJC.org). He can be contacted at [email protected].

[[In-content Ad]]

Related Stories

By Bill Dodds | Catholic News Service

More and more people in the U.S. are becoming caregivers for family members. A 2015 report by the National Alliance for Caregiving and the AARP Public Policy Institute notes, "The estimated prevalence of caring for an adult is 16.6 percent, or 39.8 million Americans."

As more people grow into this role, it is important for them to realize that there are stages in the caregiving process. Here are the stages of caregiving that some researchers have identified, although each individual caregiver won't necessarily follow this exact sequence.

-- Pre-caregiving. The caregiver sees himself or herself as a helper, beginning to lend a hand with a limited number of tasks, but doesn't identify as a "caregiver."

-- Self-identifying. Those caregiving tasks have increased to the point where the caregiver realizes and says, "I am a caregiver." The caregiver now defines the role or continues to "just do it."

-- Studying and researching. Adopting the role of a student, the caregiver wants to know and understand a loved one's condition or illness, including the symptoms and prognosis. The caregiver begins to look for resources for stress management and for informal support, such as family and friends.

-- Acting like a caregiver. The caregiver is actually doing the work, increasing the number of tasks and their frequency, learning new skills and improving on others. As the family member's health deteriorates, the caregiver begins to feel more stress.

-- Recognizing challenges. The caregiver sees the impact of the situation: the emotional strain for both the family member and the caregiver, the family member's resistance to accepting help and the caregiver's own exhaustion, anxiety and anger.

-- Getting help. The caregiver acknowledges the need for help. The spirituality of the role of caregiving becomes more apparent and the caregiver incorporates prayer and the awareness of God into daily activities. The caregiver locates and accepts formal support from social services and expands informal help to include the extended family, more friends and the parish community.

-- Managing the role of caregiver. With that added help, the caregiver begins to be more proactive in approaching the role. The caregiver may decide on a "game plan," learn about and use new coping strategies and begin to feel more in control and more confident.

-- Preparing for the end of caregiving. The caregiver understands that the role of caregiving will end with the death of the loved one. In many ways, the caregiver begins to grieve the loss of both the "once healthy beloved" and the person needing care that family member has become. This is the time the caregiver most clearly sees the true value of caregiving and the love and respect he or she has for the one who has needed care.

-- Moving on after death. The caregiver experiences shock, even if death was expected, and grieves the loss of his or her loved one. There may be a period of empty time in the day, a feeling of "now what do I do?" This is a good time to rest and reminisce, to find and use professional help and/or a support group for dealing with grief. Acceptance and appreciation of the experience will gradually come.

Bill Dodds and his late wife, Monica, were the founders of the Friends of St. John the Caregiver (www.FSJC.org). He can be contacted at [email protected].

[[In-content Ad]]
Have a news tip? Email [email protected] or Call/Text 360-922-3092

e-Edition


e-edition

Sign up


for our email newsletters

Weekly Top Stories

Sign up to get our top stories delivered to your inbox every Sunday

Daily Updates & Breaking News Alerts

Sign up to get our daily updates and breaking news alerts delivered to your inbox daily

Latest Stories


Donovan Catholic girls volleyball still rolling after graduation losses
No matter how much experience or inexperience the Donovan Catholic, Toms River, girls volleyball ...

Pope: Humanity suffers from 'dangerous syndrome' of repeating mistakes
Humanity needs to be motivated by spiritual values...

Pew: Latin American Catholics favor birth control, married and women priests, and Pope Francis
A new survey indicates that many Catholics in Latin America and the U.S....

Franciscan Monastery in Washington is sacred ground leading people to Christ, cardinal says
Washington Cardinal Wilton D. Gregory celebrated...

Mass for Life homily
I was driving back from a priest’s funeral on Long Beach Island last week.


The Evangelist, 40 North Main Ave., Albany, NY, 12203-1422 | PHONE: 518-453-6688| FAX: 518-453-8448
© 2024 Trenton Monitor, All Rights Reserved.